News Headlines Article

Senate panel approves newborn-testing bill sought by Camarillo mother
Ventura County Star

In July 2002, Rod and Kathleen Scott of Camarillo brought home their daughter, Jacquelyn, from the hospital — a child they and their doctors believed to be “a beautiful, healthy baby.”

Within two weeks, Jacquelyn began to suffer seizures and cried almost incessantly. It took until nearly her first birthday for a diagnosis to be made: Krabbe disease, a nervous system disorder that occurs in about one of every 100,000 babies.