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Giving and getting: Mom turns son’s death into new rare-disease drug voucher program
San Francisco Business Times

Jacob Froman was a typical, healthy 8-year-old boy until his diagnosis seven years ago with medulloblastoma, a rare pediatric brain cancer. He died in January 2009 at age 10.

But Jacob’s story doesn’t end there. Instead, it could spark a new wave of drugs for rare childhood diseases, benefiting companies such as BioMarin Pharmaceutical Inc. and other companies as well as patients.

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